Sites of Interest
Family-Based Disease Support Groups
- Children Living with
Inherited Metabolic Diseases
- La
Groupe d'Aide aux Enfants Tyrosinémiques du Québec
- National Organization
for Rare Diseases
- Thalassemia Foundation
of Canada
- Thyroid Foundation of
Canada (re.
Congenital Hyperthyroidism)
NOTE: If a support group doesn't currently exist for your disorder, you may want to consider starting one.
General Support Resources
Bereavement Links
Medical/Professional Organization Links
- BC
Research Institute for Children's and Women's Health - Hilary D. Vallance,
Director of Newborn Screening
- Canadian
Academy for the Advancement of Science
- Canadian
Association of Genetics Counselors
- Canadian Association
of Centres for the Management of Hereditary Metabolic Diseases
- Canadian College
of Medical Geneticists
- Canadian Medical Association
- Canadian Pediatric Society
- Childbirth
And Postpartum Professional Association of Canada
- Genetics Societies
- Human Genome Project
- IKW
Health Centre - Maritime Medical Genetics Service - Provides service
to Nova Scotia, New Brunswick, and PEI
- Inherited
Metabolic Disorders - London Health Sciences Centre
- Public Health Genetics
- Cambridge
- Newborn
Screening Facts Sheet (PDF)
- Newborn
Screening for Congenital Hypothyroidism: Recommended Guidelines
- Medical
Genetics - University of Dalhousie, Faculty of Medicine, Department of
Pediatrics
- Royal College of
Physicians and Surgeons of Canada
- Society for Inherited
Metabolic Disorders
- Sick
Kids - About Child Physiology
(re. Congenital Hyperthyroidism)
- The Human Metabolome
Project
- The Society of Obstetricians
& Gynecologists of Canada (SOGC)
Government Agency Links
- Center for Disease Control
- Government
of Canada - BioBasics - Genetic Testing
- Genetics
Centres in Canada
- Health
Canada
- Public
Health Agency of Canada
- Western Canada
- Territories
- Ontario
- Healthy Ontario
- Ministry
of Health and Long Term Care - Ontario Newborn Screening Program
- Healthy Ontario
- Québec
- Institut
national de santé publique du Québec
- Régie
de l'assurance maladie du Québec
- Programme québécois de dépistage néonatal
- Institut
national de santé publique du Québec
- Atlantic Canada
- Health and Community
Services - Newfoundland and Labrador
- Healthy Newfoundland and Labrador
- Health and Wellness
- New Brunswick
- Nova Scotia
- Health
- Nova Scotia Newborn Screening Service: NBS
Pamphlet
- Nova Scotia Newborn Screening Service: NBS
Pamphlet
- Prince
Edward Island - Health
- Health and Community
Services - Newfoundland and Labrador
- Outside of Canada
Newborn Screening Organizations (outside of Canada)
Children's Organizations
- About Kids Health
- Camp Jumoke
(Camp for children with Sickle Cell Anemia)
- Easter
Seal Society
- Kids Ability
- Centre for Child Development
- KRG Childrens
Charities
- Ontario
March of Dimes
- Ronald McDonald House
Charities
Other Organizations
- Canadian
Academy of Audiology
- Canadian
Centre on Disability Studies
- Canadian
Directory of Genetic Support Groups
- Canadian Liver Foundation
- Corporation de recherche
et d'action sur les maladiés héréditaires
- Genetic
Alliance
- Healthy Mothers Healthy
Babies Coalition
- Organization For Endocrine & Metabolic Diseases
- PKU
News
Other Sites of Interest
- Anemia Institute
for Research and Education
- SimulConsult,
Inc. Medical diagnostic software for medical professionals
- Kennedy
Krieger Institute - Metabolic Disorders
- Doctors Guide
- Cerebral
Palsy - Ask Doctor
- Drug Infonet
- AboutNewbornScreening.com
- Gene News
- Genes, Ethics
& the Environment - a public policy journal of The Ramazzini Institute
- Genetic Information
and Patient Services, Inc. (GAPS)
- NewbornScreening.com
- Pediatric Database
- PerkinElmer
Life Sciences - Reagents, instrumentation and LIMS software supplier
for screening programs
- SpeciaLink
- The national centre for childcare inclusion